Disclaimer

The Association for Spina Bifida and Hydrocephalus is a Registered Charity (Registered in England No. 249338).

The Association for Spina Bifida and Hydrocephalus is committed to protecting the privacy of those who visit this site. The following information explains what information we compile, what information we keep and how we use that information.

What information do we compile?

If you use any of the email facilities or forms within the site, we will collect your email address, your name and, where relevant, your postal address to enable us to fulfil your request, enquiry or order. If you subscribe to our monthly email newsletter, we capture your email address only and you can choose to unsubscribe at any time. If you ask to be kept informed of our work, we will retain your information so that we may contact you in the future. You can cancel this at any time by contacting us either in writing or by email to dpa@asbah.org

If you use any of the secure forms within the site, your credit card information is used solely to complete that transaction. All such forms are secure and cannot be accessed by anyone other than the members of staff necessary to complete the transaction.

In addition, information is automatically retrieved on your browsing behaviour through the site. This information does not enable us or any third parties to identify you personally in any way, but does allow us to track usage of the site,
We use this information to further improve the site.

What do we do with the information we collect?

The email address that you provide when you subscribe to our e-newsletter, lets us send you information about important issues and changes to the site via email on a regular basis. Each time you receive a message you will have the option to decline to receive further information from ASBAH.

The email address, name and postal address you provide when you request information to be sent to you will only be used to communicate with you about this information. This information will NOT be shared with anyone or any organisation outside ASBAH. You can cancel this at any time by contacting us. We do not sell or rent your information to anyone. For further information, see our Data Protection Policy.

Use of Cookies

We only use cookies on our web-site to enable password protected areas and interactive surveys, not to collect users' personal information.

Our information

The information contained in this website is supplied by ASBAH for individuals seeking to find out more about Spina Bifida and Hydrocephalus, the work of The Association for Spina Bifida and Hydrocephalus and how to get involved.

Whilst we welcome visitors world wide who may find our information valuable, ASBAH’s beneficial area is England, Wales and Northern Ireland.

While we try hard to ensure the accuracy of the information, ASBAH can not be held responsible for the consequences of any actions arising from the use of information gained from this website.

Change to this Privacy Policy

We may amend this policy from time to time as we develop our site. If we make any major changes in the way we use your personal information we will notify you by posting a prominent announcement on our pages.

Questions or Suggestions

If you have any questions or suggestions please email us at dpa@asbah.org

Data Protection Policy

Accessing Information Held About You

You have a number of rights to access information stored about you by The Association for Spina Bifida and Hydrocephalus . When a request has been made in writing (which includes email to dpa@asbah.org) and upon payment of a fee (£10) to The Association for Spina Bifida and Hydrocephalus to cover our costs, you are entitled to be informed regarding any of your personal data stored by The Association for Spina Bifida and Hydrocephalus. On making such a request you will be told:

What personal data is stored.
The purposes for which your data is being processed.
Who has access to your data.

The Association for Spina Bifida and Hydrocephalus does NOT pass any personal data to third parties. At all times you can ask The Association for Spina Bifida and Hydrocephalus to remove your personal data to ensure that you receive no further contact or information. You can also choose which information you wish to receive. Contact us - either in writing or by email to dpa@asbah.org - to change your permission levels or to ask for further information.

NOTE:

Unless The Association for Spina Bifida and Hydrocephalus has received a request in writing, with the prescribed fee, The Association for Spina Bifida and Hydrocephalus is not required to comply with the user’s request. The Association for Spina Bifida and Hydrocephalus is also not required to comply with a request where they have already complied with an identical or similar request by the same individual unless a reasonable interval has elapsed between compliance with the previous request and the making of the current request. In deciding what amounts to a reasonable interval, a number of factors would be considered:

The nature of the data.
The purpose for which the data are processed.
The frequency with which the data is altered.